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Mayor Julien issues CDH Action Day proclamation

North Baltimore Mayor, C. Michael Julien issues a proclamation declaring April 19, 2015 as CDH Action Day.

Congenital Diaphragmatic Hernia affects over 500,000 babies each year, with just half (50%) surviving.

Mayor Proclamation CDH awareness
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What Is Congenital Diaphragmatic Hernia?

Congenital diaphragmatic hernia (CDH) is a defect in an unborn baby’s diaphragm, the muscle that divides the chest cavity and abdominal cavity.

CDH occurs when the diaphragm does not close the right way during the baby’s development and abdominal organs push (“herniate”) through the defect into the chest cavity.

This can occur on the left or right side, but left is more common. The organs that come up into the chest can press on the lungs and can result in a condition in which the lungs remain small and underdeveloped, also called pulmonary hypoplasia. Some babies with CDH also develop conditions affecting their heart, liver, intestines and nervous system development.

CDH is not usually inherited, and its cause is not known. CDH occurs in about one in 2,200 live births and is usually seen during a routine prenatal ultrasound in the first or second trimester.

Congenital diaphragmatic hernias can range from mild to severe. In the best cases, infants do very well with routine prenatal and neonatal care, and may not need emergency surgery after birth. Lungs in these babies with a mild form of CDH will still be smaller than normal, but they have the chance to grow and adapt for many years. Many of these children can lead normal, active lives without long-term problems.

Babies with severe CDH will struggle after birth. Some will not survive. Others are saved through intensive medical care. However, these babies often have long-term health issues with breathing, feeding, growth, hearing and development.

For more information:  http://www.cincinnatichildrens.org/service/f/fetal-care/conditions/congenital-diaphragmatic-hernia/

 

2 thoughts on “Mayor Julien issues CDH Action Day proclamation”

  1. Thank you so much North Baltimore and Mayor Julien. As some may not know we lost are beautiful daughter Braylyn Ann Mareches from complications due to CDH. She was born on Oct 21, 2014 and gained her wings on Nov 2, 2014. She was such a little fighter to hang on for 12 days. In those 12 days she made us laugh and cry. She showed us, her grandparents and sister a strength, and will to live, that amazed us everyday. We will always have the memories and she will forever live in our hearts and minds. As stated above, it is unknown what causes CDH, so we need to spread the word about this birth defect and raise awareness so they can get the funding to do more research and help save these babies.

  2. I would like to thank Mayor Julien and the Village of North Baltimore for the Proclamation. It is very much appreciated.
    I would like to thank JP for the article on CDH. Cincinnati Children’s Hospitals’ website is an excellent source for information concerning CDH.
    As Tina stated above, Braylyn will live in our hearts and minds for forever.
    As some of the readers of this post may know, I was an EMT on North Baltimore EMS for 20 years. Until my granddaughter was diagnosed with CDH I had never heard of it. There needs to be more awareness and research into this terrible birth defect.

    Sincerely,

    Jeff Bretz

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